The volunteer will work with Facial Palsy UK to help them develop a strategic framework and set out its priorities.
Facial palsy is a condition resulting from damage or absence or impairment of the facial nerve that supplies the muscles of facial function and expression. It affects blinking, closing the eye for sleep, eating and drinking, speech, smiling and frowning.
Facial Palsy UK was set up in 2012, to offer support to the 100,000 people affected by facial palsy due to any cause. Its aims are:
- To increase awareness of facial palsy and its social, physical, and psychological consequences.
- To improve the physical and emotional health of adults and children with facial palsy.
- To promote diagnosis, acute and long-term management and rehabilitation of people living with facial palsy.
The charity has two members of staff and has been successful in developing support, advice and information services via its website and support services through its community of people with facial palsy, parents, family members, friends, and health professionals. However, some of the charity’s growth has been opportunistic, for example in response to the finance available from specific grants. It would be helpful for the charity to set out its priorities more clearly and focus its energies and fundraising on these, rather than try to do too much or spread its resources too thinly.
The charity wishes to take a longer-term, more strategic view of the development of its services, research projects and its efforts to get the facial palsy fully recognised by the NHS as a specific condition (and to develop diagnostic and therapeutic services accordingly).
The volunteer would work with the charity and its trustees to help them develop a strategic framework within which to set out its priorities for service development and research, including a funding strategy to support these priorities. The volunteer would be familiar with strategic planning, decision analysis and decision-making tools.
Project benefits for the organisation
Currently, the diagnosis and treatment services for people in the UK with facial palsy are patchy across the UK and some people are not getting the support and treatment they require. It takes on average 5.6 years from point of diagnosis for a person with facial palsy to reach a specialist. This project will help Facial Palsy UK to set priorities for developing services for people with facial palsy and enable it to set priorities for its work with the NHS and medical research community.